A registry for documenting integrative oncology treatments in relation to the quality of life of patients with cancer

Depending on the type and stage of cancer, treatment typically involves surgery, chemotherapy, radiation therapy, or newer targeted drugs. Integrative oncology is a holistic approach that complements—but does not replace—standard-of-care cancer treatment. It encompasses scientifically validated practices such as nutrition, exercise, stress management, and sleep hygiene, as well as so-called mind-body techniques (e.g., meditation, yoga, tai chi) and, in some cases, complementary supplements. The goal is to alleviate symptoms, increase resilience, promote well-being, and strengthen patients’ self-efficacy. Many people are interested in these additional options; however, there is currently a lack of systematic scientific data on their use, effectiveness, and impact on quality of life as well as physical and mental health.

The registry is therefore designed to systematically document the use of integrative oncology interventions and their relationship to quality of life and symptoms. During the initial visit, patients will complete questionnaires on demographics, lifestyle, interventions used, symptom burden, quality of life, fatigue, sleep, mental health, and satisfaction. These assessments will be repeated after 3, 6, and 12 months and subsequently on an annual basis. Additional surveys are planned in the event of specific occurrences, such as a relapse. The study is non-interventional; that is, standard therapy is not altered, and no new medications or treatments are being tested. The registry is also intended to serve as a foundation for future studies.